This week in October is always a hard one for me. I wait for it each year, anticipating it's arrival, yet it always sneaks up on me.
October 15th is Pregnancy and Infant Loss Remembrance Day, and four days later, October 19th, is the anniversary of Nathaniel's birth. And his death. He would be four years old this year.
For those of you who may be new to this blog, our second son, Nathaniel, had a rare chromosomal abnormality called Trisomy 18 (or Edward's syndrome). We chose to carry him to term, knowing full well that his condition was "incompatible with life" and being told at each turn that he would very likely die in utero prior to birth. Except that he didn't. We were blessed with two hours with him... although it wasn't enough. It could never be enough.
When I started writing his story, without formally thinking it or saying it out loud, I kind of/sort of/really hoped to have it done by his birthday. So that I could post on his birthday about his birth day. But unless I do absolutely nothing in the next four days other than write -and unless I write such long posts that likely no one would be interested in reading them- I don't think it's going to happen.
And I'm a little disappointed. In myself. Like I let him down.
I know that that's silly, and that it's about me, not him. Nonetheless, I wish I'd worked more diligently to finish his story on time. But when I ask myself who I'm writing his story for and why I'm writing it, I have to admit that (while I'd love it if you would all take the time to read it) in as much as it is "Nathaniel's story", it's my story too, and I write it for myself and for these other little beings who call me "mom". So that one day they'll be able to read about their brother, and also begin to understand who I was then and how that experience changed me.
How Nathaniel changed me.
It is a story of loss and pain and grief, but also of hope. So I remember him tonight on Pregnancy and Infant Loss Remembrance Day as I remember him everyday. I am thankful for the oh so brief time we were given with him, and I am thankful for the hope.